Truly the worst thing ever.

[Ravensfan01]

This is just the worst thing ever. I have been infested for 18 and a half months. No part of me has been unbitten. I have been through 10 doctors three of them dermatologists nd 1 infectious disease doctor. No one has ever figured it out. I’ve been to over 35 doctor’s appointments and have easily spent around four thousand dollars on co-pays and prescriptions. I have had bacterial infections and fungal infections because of the sores on my skin. I got a little shity with the first dermatologist and when the subsequent doctors wanted my transcripts that dermatologist called it excision. AKA I’m picking I am picking my skin open like some kind of fucking meth head and every doctor since has stayed with that diagnosis. I need to start looking into finding a lawyer for malpractice against at least four of those doctors. My boyfriend of 15 years started getting bit in June,last year.
We only figured out that it was mites in July, 2019. At first a friend of his saw the bite marks and said I’ve seen that it looks like scabies! At least we had a starting point and from there signs are pointing to bird mites more and more. The hard biting little have infested every part of my home.
I have lost so much. Material things: clothing, bed sheets, pillows, make-up over and over make-up. Things that I’ve been sentimental about a lamp that got busted because of a vacuum cord because I have to vacuum twice a day everyday. We threw things out back on the porch and had a friend come and haul it away and in there was my glock magazines, blankets, shoes, a few paintings. I no longer even own a pair of dress shoes. Another thing I’ve lost? About half of my sanity. I’m sure someone can sympathize. Because there is nothing like trying to pull one of them out of your skin having it crack and watching the rest it wiggle back in to fuck up ones sanity.
I’ve lost my self-confidence. I hate myself everytime I look in the mirror more and more. I lose a lot of time because I can’t stop staring and trying to get these things off of me. I’ve lost all my friends most of my family. Even co-workers I thought we were friends. A few months ago I found out that they were all making fun of me behind my back. Damn it I’m a college graduate and I have a really good job and I thought people were beyond this. A supervisor actually had a co-worker asked me about all this stuff and I told them a little highlight of what was going on and the supervisor turn right around went to my employee health program and had me reported. I had to violate my own HIPAA because I had to take in paperwork showing my diagnosis my medications I was taking and recommendations if any. I almost lost my job because I would wake up every morning and cry for so long that I couldn’t get myself together and get to work on time. I almost lost my boyfriend because that’s all I was doing was crying all the time who wants to be around that?
My 13 year old son lives with his aunt right now because I don’t want him subjected to these damn things or me when I get in one of these depressed moods. None of this is healthy for him.
His car is completely infested even the headliner. And he just bought that car last December. We spray we vacuum we hope we wish but nothing seems to work long-term.
I have good days where I can be optimistic and joke about how they don’t pay any rent or entertain. And then I have bad days where I feel hopeless.
There’s one under my toenail right now been there for about 2 weeks. It’s just a little tickle tickle tickle, tickle tickle tickle. All. The. Time. And there goes that sanity slipping away again. There is a few tips, tricks and items on here that I haven’t tried. At this point EVERYTHING is worth a try.

[CNDNGirl]

I am SO SORRY to hear about all of this. It is truly hell. And to have it cause your son to live away from you — I’m so sorry to hear that.

Have you been keeping specimens that you are able to pull off of you? Can you bring those to a local specialist? Someone who researches arachnids and mites? (Although I reached out to someone in my local area (Ontario) and they said that bird mites cannot live off of human blood…. so maybe that won’t work). But something physical that you have that you can use if you sue for malpractice? Are you actively still finding them?

I totally empathize. As I write this I am lying in my vinyl-wrapped bed, with a tea tree oil mask on my head, covered with an uncomfortable shower cap, my freshly scrubbed skin covered with vaseline and neem oil, with rashes all over my face and body. We feel your struggle. Keep up what you’re doing and try some of these new tricks that you see here —- maybe something will help to break the cycle. I personally am completely dependent on enzyme spray, although WTF knows if that is even working. It’s the unknown of it all that’s the absolute worst.

Keep fighting 🙂

• This reply was modified 4 years, 10 months ago by CNDNGirl.

[FinallyFree]

I am so sorry to hear both of your stories. I went through it all too and thought I would never ever get out the other side. Please see my story that I’ve posted today – I really hope it can help you too.

With heartfelt good wishes, FinallyFree x

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